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Author: Kathleen Burlingame
Publisher: Library Juice Press
ISBN: 9781634001335
Category :
Languages : en
Pages : 0
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Book Description
Author: Kathleen Burlingame
Publisher: Library Juice Press
ISBN: 9781634001335
Category :
Languages : en
Pages : 0
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Book Description
Author: Annika Richterich
Publisher: University of Westminster Press
ISBN: 1911534734
Category : Social Science
Languages : en
Pages : 156
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Book Description
This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Author: Ellen Beth Mandinach
Publisher:
ISBN: 9781760942021
Category : Data protection
Languages : en
Pages : 0
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Book Description
Author: Mike Loukides
Publisher: "O'Reilly Media, Inc."
ISBN: 1492078212
Category : Computers
Languages : en
Pages : 37
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Book Description
As the impact of data science continues to grow on society there is an increased need to discuss how data is appropriately used and how to address misuse. Yet, ethical principles for working with data have been available for decades. The real issue today is how to put those principles into action. With this report, authors Mike Loukides, Hilary Mason, and DJ Patil examine practical ways for making ethical data standards part of your work every day. To help you consider all of possible ramifications of your work on data projects, this report includes: A sample checklist that you can adapt for your own procedures Five framing guidelines (the Five C’s) for building data products: consent, clarity, consistency, control, and consequences Suggestions for building ethics into your data-driven culture Now is the time to invest in a deliberate practice of data ethics, for better products, better teams, and better outcomes. Get a copy of this report and learn what it takes to do good data science today.
Author: Gry Hasselbalch
Publisher:
ISBN: 9788771920178
Category :
Languages : en
Pages : 202
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Book Description
Author: Carolyn Adams
Publisher: Cambridge University Press
ISBN: 1108619916
Category : Law
Languages : en
Pages : 279
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Book Description
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
Author: Jane Sandberg
Publisher: Library Juice Press
ISBN: 9781634000543
Category : Cataloging
Languages : en
Pages :
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Book Description
Explores and develops a framework for the ethical practice of name authority control, through theoretical and practice-based essays, stories, content analyses, and other methods
Author: Luciano Floridi
Publisher:
ISBN: 9781013273506
Category : Medical
Languages : en
Pages : 198
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Book Description
This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.
Author: Samiksha Shukla
Publisher: Springer Nature
ISBN: 9811907528
Category : Computers
Languages : en
Pages : 91
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Book Description
This book gives a thorough and systematic introduction to Data, Data Sources, Dimensions of Data, Privacy, and Security Challenges associated with Data, Ethics, Laws, IPR Copyright, and Technology Law. This book will help students, scholars, and practitioners to understand the challenges while dealing with data and its ethical and legal aspects. The book focuses on emerging issues while working with the Data.
Author: Carolyn Adams
Publisher: Cambridge University Press
ISBN: 1108426646
Category : Law
Languages : en
Pages : 279
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Book Description
A practical guide to reform of the regulatory environment for access to government held data for research.
