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Author: Ruth B. Purtilo
Publisher: JHU Press
ISBN: 1421403684
Category : Medical
Languages : en
Pages : 394
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Book Description
Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.
Author: Ruth B. Purtilo
Publisher: JHU Press
ISBN: 1421403684
Category : Medical
Languages : en
Pages : 394
Get Book
Book Description
Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.
Author: Ladislav Volicer, MD, PhD
Publisher: Springer Publishing Company
ISBN: 0826117414
Category : Medical
Languages : en
Pages : 320
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Book Description
This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.
Author: Stephen G. Post
Publisher: JHU Press
ISBN: 9780801864094
Category : Medical
Languages : en
Pages : 178
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Book Description
Centres on dilemmas concerning the course of Alzheimer's disease and other dementias. The author presents an overview of the major ethical issues relating to dementia care.
Author: Mary Beth Morrissey
Publisher: CRC Press
ISBN: 1315350610
Category : Business & Economics
Languages : en
Pages : 257
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Book Description
With more people living longer lives, there is increased importance in the health care industry on improving services for the elderly. This comprehensive book gives an expert overview of the topics and challenges, along with imperative ethical and legal frameworks. The book also details existing programs and benefits in relation to a realistic portrayal of population needs. Other important issues are covered such as long-term palliative care and hospice, other vulnerable populations, elder abuse, public-private collaboration, evidence-based policy-making, and much more.
Author: Anthea Innes
Publisher: Routledge
ISBN: 1317484622
Category : Family & Relationships
Languages : en
Pages : 102
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Book Description
Dementia: The Basics provides the reader with a clear and compassionate introduction to dementia and an accessible guide to dealing with different parts of the dementia journey, from pre-diagnosis and diagnosis to post-diagnostic support, increasing care needs and end of life care. Co-authored by an academic, a person living with dementia and a family carer, the book endeavours to raise awareness of dementia, challenge stereotypical and negative ideas about what it means to have dementia and champion a society where people living with dementia can be active as they wish for as long as possible. The authors present an overview of current research at each step of the dementia journey as well as including knowledge from lived experience, enhancing understanding and challenging thinking about what it might be like to live with a diagnosis or to care for a loved one. As a whole, the book emphasises the importance of prioritising the person living with dementia, as well as considering the impact of what any initiative or action might mean for them, their families and their care supporters. Offering both an accessible introduction to dementia and practical tools, this book will be ideal for health and social care professionals, students of social care, health care and nursing, people with dementia, carers and anyone wanting to understand more about the condition.
Author: Pat Otwell
Publisher: Taylor & Francis
ISBN: 1135696594
Category : Family & Relationships
Languages : en
Pages : 284
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Book Description
Learn how to develop an effective Alzheimer’s ministry. The Guide to Ministering to Alzheimer's Patients and Their Families examines the importance of spirituality in dealing with the everyday challenges of this mysterious disease. Not a “how-to” manual with step-by-step instructions or tried and true formulas, this unique book instead examines the essential elements of ministering to dementia patients based on the first-hand accounts of family members living through pain and uncertainty. The book explores the stages of Alzheimer's, grief and guilt, available resources, and implications of spiritual care for patients and families. It is equally useful as a textbook for graduate and undergraduate work, a reference for study groups and seminars, and a primer for those with limited knowledge of the illness. Ministers sometimes neglect Alzheimer’s patients and their families because they feel they don’t know what to say or do even though they want to be obedient and faithful servants in this specialized ministry. The Guide to Ministering to Alzheimer’s Patients and Their Families communicates the thoughts, feelings, and needs of those affected by the disease to help ministers feel more comfortable, confident, and competent as they develop a theological understanding of God, Alzheimer’s patients, and their role in ministry. The book also provides models for ministry; role-play scenarios; a sample text for a care facility worship service, a care facility memorial service, and a funeral service for a Christian and a non-Christian as well as a sample clergy seminar program on Alzheimer’s ministry. The Guide to Ministering to Alzheimer’s Patients and Their Families examines: common characteristics of early, mild, moderate, and severe Alzheimer’s general information about Alzheimer’s ethical decision-making support group ministry respite care religious rites faith issues heredity hospitalization of Alzheimer’s patients long-distance caregiving working with other clergy The Guide to Ministering to Alzheimer’s Patients and Their Families also includes a special appendix of selections from the Scriptures. This book is a unique resource for all Christians who desire to minister to those affected by Alzheimer’s—especially pastors, priests, chaplains, pastoral counselors, church leaders, healthcare professionals, and seminary students.
Author: Ruth Chadwick
Publisher: SAGE Publications
ISBN: 1412945348
Category : Medical
Languages : en
Pages : 481
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Book Description
The SAGE Handbook of Healthcare Ethics is an influential collection of work by leading scholars on the fundamental and emerging themes which define healthcare ethics. This authoritative Handbook brings together experts with backgrounds in philosophy, sociology, law, public policy and the health professions and reflects the increasing impact of globalization and the dynamic advances in the fields of bioscience and genetics, which keep ethics at the centre of debates about the future direction of healthcare. Combining international and interdisciplinary perspectives, the Handbook provides a cutting-edge account of debates in five key areas: Health Care Ethics in an Era of Globalization Beginning and End of Life Vulnerable Populations Research Ethics and Technologies Public Health and Human Rights
Author: David B. Cooper
Publisher: Routledge
ISBN: 042987930X
Category : Medical
Languages : en
Pages : 404
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Book Description
Palliative Care Within Mental Health: Ethical Practice explores the comprehensive concerns and dilemmas that occur surrounding people experiencing mental health problems and disorders. Working beyond narrow, stereotypical definitions of palliative care as restricted to terminal cancer patients, this balanced and thought-provoking volume examines the many interrelated issues that face the individual, families, and caregivers, setting the groundwork for improved, ethical relationships and interventions. Chapters by experts and experienced practitioners detail the challenges, concerns, and best practices for ethical care and responses in a variety of individual and treatment contexts. This is an essential and thoughtful new resource for all those involved in the fast-developing field of palliative mental health.
Author: Christoph Rehmann-Sutter
Publisher: OUP Oxford
ISBN: 0191023337
Category : Medical
Languages : en
Pages : 272
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Book Description
Wish to die statements are becoming a frequent phenomenon in terminally ill patients. Those confronted by these statments need to understand the complexity of such wishes, so they can respond competently and compassionately to the requests. If misunderstood, the statements can be taken at face-value and the practitioner may not recognise that a patient is in fact experiencing ambivalent feelings at the end of life, or they may misinterpret the expressed wish to die as a sign of clinical depression. Public debate about the morality and ethics of various end-of-life care options has exploded in recent years. However, it has never been sensitive to the finer aspects of clinical reality or the experiences of patients. The Patient's Wish to Die: Research, Ethics, and Palliative Care brings together that reality and the patient's voice, combining them with different research approaches. It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care. The book presents material in an open and unbiased manner whilst remaining sensitive to the spiritual and existential dimensions of dying, and to the different cultural views that provide meaning to the individual. Written by the best specialists and ethics scholars from around the world, including palliative care practitioners and end-of-life scholars from countries where assisted dying practices are legalized and from those where it isn't, The The Patient's Wish to Die: Research, Ethics, and Palliative Care will prove essential reading for all those working or studying in the field of palliative care.
Author: Marshall B. Kapp, JD, MPH, FCLM
Publisher: Springer Publishing Company
ISBN: 9780826116536
Category : Law
Languages : en
Pages : 136
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Book Description
We are now engaged in a movement that de-emphasizes the reliance on institutional forms of long-term care for disabled persons needing ongoing daily living assistance and converges on the use of non-institutional service providers abnd residential settings. In this latest edition of Ethics, Law and Aging Review , Kapp and ten expert contributors help us examine the forces and potential for changeing the long-term care industry (both positively and negatively) and address this paradigm shift from the inpersonal, public psychiatric institutions of the 1960s and 1970s to the present-day assisted living environments that have been fueled by economic, social, polictical, and legal forces. Most important ly, this volume identifies obstaclesto change and enlighten service providers, advocates, and key policy makers to the pitfalls that can largely interfere with positive outcomes as a result of long-term care deinstitutionalization. Topics explored include: Community-based alternatives for older adults with serious mental illness Failing consumer-directed alternatives to nursing homes Ethics of Medicare privatization
