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Author: Roger J. Stancliffe
Publisher: Springer Nature
ISBN: 3030986977
Category : Psychology
Languages : en
Pages : 542
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Book Description
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
Author: Roger J. Stancliffe
Publisher: Springer Nature
ISBN: 3030986977
Category : Psychology
Languages : en
Pages : 542
Get Book
Book Description
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
Author: Sandra L. Friedman
Publisher: American Association
ISBN: 9781935304074
Category : Adulthood
Languages : en
Pages : 0
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Book Description
End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.
Author: I. Leslie Rubin
Publisher: Springer
ISBN: 3319180967
Category : Medical
Languages : en
Pages : 2307
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Book Description
This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.
Author: Sue Read
Publisher: Jessica Kingsley Publishers
ISBN: 0857007262
Category : Social Science
Languages : en
Pages : 256
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Book Description
Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.
Author: Timothy Lillie
Publisher: Pro-Ed
ISBN:
Category : Assisted suicide
Languages : en
Pages : 206
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Book Description
This book is a useful supplement to existing information on end-of-life decision-making through the lens of disability. The style of the articles is refreshing, ranging from scholarly article to short personal essay. In a field that is particularly divided, this book's collaborative, multidisciplinary approach is an important contribution.
Author: Vee P. Prasher
Publisher: Springer Nature
ISBN: 3030569349
Category : Medical
Languages : en
Pages : 392
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Book Description
This book brings together findings from research and clinical practice, with comprehensive coverage of the important aspects of mental health in ageing persons with intellectual and developmental disabilities. It is crucial for professionals involved in the care of persons with all intellectual and developmental disabilities to have a broad understanding of the essential range of issues, and therefore this book provides a truly multi-disciplinary perspective, complete with many figures and illustrations to underline the key points. Undoubtedly, research and clinical practice are much more advanced in the general ageing population than in persons with intellectual and developmental disabilities, and so professionals and academics must be made fully aware of commonalities and idiosyncrasies of older people with intellectual and developmental disabilities. This book presents the ongoing developments concerning mental health and aging, which will become relevant to the intellectually disabled population. Through experience, this book also acknowledges that the impact on the persons themselves and on their carers always needs to be taken into account, with treatment programs established with a multi-faceted team approach in mind. Avoiding the jargon of many titles in this area while maintaining the hands-on approach of clinical practice, this book meshes the practical and scientific worlds, with all chapters written by leading experts in the field. Beyond the US, the IASSIDD support expands the book message worldwide.
Author: Gary Witham
Publisher: Taylor & Francis
ISBN: 1000779173
Category : Medical
Languages : en
Pages : 162
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Book Description
Focussing on end-of-life care for people who use, or have used, substances, this book explores their social and health care needs and the multiple disadvantages they have often experienced, discussing the complexities around access to care that result. Presenting models of good practice, case studies and empirically based evidence, Substance Use, End-of-Life Care is informative, rigorous and useful for policy and practice development. The first section foregrounds the personal experiences of people living with substance use, their families and friends, and the health and social care professionals who work with them. The second section looks at how health inequalities can impact people in need of palliative care, including chapters on health literacy, mental health and learning disabilities. The final section explores social challenges that may be experienced, including homelessness, sex work, racism and incarceration. This interdisciplinary volume is essential for researchers, practitioners, students and educators working around substance use, mental health and palliative and end-of-life care, who are looking for guidance and a reference for their work in supporting people at the end of their lives who have multiple and often complex needs.
Author: Carrie Traher
Publisher: Taylor & Francis
ISBN: 1003821200
Category : Psychology
Languages : en
Pages : 334
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Book Description
This volume presents the leading research in child and adolescent grief from a diverse and global perspective, focusing on the systemic, political, and cultural processes that have a direct bearing on the way youth experience loss and grief. Carrie Traher and Lauren J. Breen bring together a global community of academics, practitioners, and social activists to discuss and address the complexity of lived experiences of grief for young people today. Presented in four parts, the contributors begin by providing a theoretical overview of youth, grief, and bereavement, before moving onto other important topics, such as suicide bereavement, the trauma of war, digital grief narratives, child soldiering, and more. Within each chapter, authors address contemporary theoretical frameworks, research findings, and praxis related to both death and non-death losses, such as the Black Lives Matter movement, environmental grief, and grief on the internet and social media. Including contributors from a range of countries and from various disciplines, such as educators, health care professionals, policy makers, and advocates, the themes of coping, resilience, and growth are central and interwoven in each chapter. This handbook is essential for researchers, clinicians, scholars, educators, parents, and activists as to the most pressing societal and global issues that affect youth grief today and to provide context to their personal and professional interactions with youth. Chapter 9 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.
Author: Michelle Putnam
Publisher: Routledge
ISBN: 0429878370
Category : Family & Relationships
Languages : en
Pages : 574
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Book Description
Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.
Author: Karrie A. Shogren
Publisher: Springer
ISBN: 3319590669
Category : Psychology
Languages : en
Pages : 383
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Book Description
This handbook examines the wide-ranging applications of positive psychology in the field of intellectual and developmental disabilities. It discusses the change in perceptions of disability and the shifting use of traditional deficit-based treatments. It presents evidence-based approaches and strategies that promote individuals’ strengths and capacities and as well as provide supports and services to enhance quality of life. Chapters address medical and psychological aspects in intellectual and developmental disabilities, such as mindfulness, motivation, physical well-being, and self-regulation. The book also discusses uses of assessment practices in evaluating interventions and client outcomes. In addition, it explores ways practitioners, with positive psychology, can focus on what a person is capable of achieving, thereby leading to more effective approaches to care and treatment. Topics featured in the Handbook include: Translating the quality of life concept into practice. The Casual Agency Theory and its implications for understanding self-determination. The Mindfulness-Based Individualized Support Plan (MBISP) and its use in providing support to people with intellectual and developmental disabilities. The unique role that friendship plays to people’s lives and social well-being. Supported Decision-Making (SDM) as an alternative to guardianship. A positive psychology approach to aging and retirement. The Handbook of Positive Psychology in Intellectual and Developmental Disabilities is a must-have resource for researchers, professors, and graduate students as well as clinicians and related professionals in clinical child and school psychology, behavioral therapy, social work, applied behavioral analysis, recreational therapy, occupational therapy, education, speech and language pathology, psychiatry, clinical medicine, and nursing.
