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Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409372
Category : Family & Relationships
Languages : en
Pages : 479
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Book Description
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409372
Category : Family & Relationships
Languages : en
Pages : 479
Get Book
Book Description
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Author: Richard Hain
Publisher: Oxford University Press
ISBN: 019882131X
Category : Medical
Languages : en
Pages : 535
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Book Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Author: Maisha T. Robinson
Publisher: Case Studies in Neurology
ISBN: 110840491X
Category : Medical
Languages : en
Pages : 187
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Book Description
This guide delivers problem-based scenarios in neuropalliative care; improving quality of life for patients with neurologic diseases.
Author: Stefan J. Friedrichsdorf
Publisher: MDPI
ISBN: 3038973505
Category : Children
Languages : en
Pages : 253
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Book Description
This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Author: Philip D. Nowicki
Publisher: Springer Nature
ISBN: 3030465748
Category : Medical
Languages : en
Pages : 305
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Book Description
Many of the existing books focusing on the orthopedic management of patients with cerebral palsy encompass only care for the young patient, but this practical text reviews and delineates orthopedic care for patients with cerebral palsy throughout the lifespan. Readers will find a discussion of both non-operative and operative orthopedic management across all ages and functional levels. The text presents a general overview of cerebral palsy, evaluation of patients with cerebral palsy, and procedures commonly used to treat various orthopedic conditions in patients with cerebral palsy. Spasticity management and gait evaluation are likewise highlighted, and surgical chapters cover techniques for the hip, knee, foot and ankle, and spine. It also incorporates chapters focused on issues related to the rehabilitation of patients with cerebral palsy, including bracing, orthotics and other durable medical equipment, physical and occupational therapy, pain management, and adaptive activities and sports, which aim to improve the overall quality of life for patients through the lifespan. Finally, there is a chapter focused on the care transition from childhood to adulthood, an area of importance often neglected in current texts covering patients with cerebral palsy. Whether in the operating room, multi-specialty clinic or private office, Orthopedic Care of Patients with Cerebral Palsy will be a go-to resource for orthopedists, pediatricians and all medical professionals caring for this population.
Author:
Publisher: Elsevier
ISBN: 0323860087
Category : Medical
Languages : en
Pages : 296
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Book Description
Neuropalliative Care, Part Two, Volume 191 covers a type of care that is given when there is no cure for the neurological disorder and the patient is in distress. It provides a scholarly background of neuropalliative care, from historic underpinnings to its practice in various geographical regions, along with best practices for specific neurological disorders. It covers the work of multi or interdisciplinary teams whose care is intended to make the patient as comfortable as possible and includes partners and families in treatment plans. Summarizes research in neuropalliative care Identifies current practices in different geographic regions Provides best practices for specific neurological disorders and patient populations Includes advanced care planning
Author: Rita Pfund
Publisher: CRC Press
ISBN: 1315346648
Category : Medical
Languages : en
Pages : 348
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Book Description
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Author: Benjamin J. Sadock
Publisher: Lippincott Williams & Wilkins
ISBN: 1451178611
Category : Medical
Languages : en
Pages : 1510
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Book Description
The best-selling general psychiatry text since 1972, Kaplan and Sadock's Synopsis of Psychiatry is now in its thoroughly updated Tenth Edition. This complete, concise overview of the entire field of psychiatry is a staple board review text for psychiatry residents and is popular with a broad range of students and practitioners in medicine, clinical psychology, social work, nursing, and occupational therapy. The book is DSM-IV-TR compatible and replete with case studies and tables, including ICD-10 diagnostic coding tables. You will also receive access to the complete, fully searchable online text, an online test bank of approximately 100 multiple-choice questions and full answers, and an online image bank at www.synopsisofpsychiatry.com.
Author: Julia M. Addington-Hall
Publisher:
ISBN:
Category : Electronic books
Languages : en
Pages : 328
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Book Description
The specialty of palliative care has traditionally grown out of oncology and there has been little research into the needs of patients dying from causes other than cancer. Few non-cancer patients receive hospice in-patient, home care or day care although a good proportion of hospices say thattheir services are available to non-cancer patients. As a result, the importance of palliative care for non-cancer patients is now being increasingly recognized internationally, and in the UK a committee reporting to the Department of Health recommended that palliative care should be accessible toall patients who need such care.Palliative Care for Non-Cancer Patients considers the needs and experiences of patients dying from, for example, stroke, heart disease or dementia by,drawing on a range of disciplines and specialties in medicine. The provision of palliative care for patients dying from causes other than cancerraises a number of important questions for policy makers and purchasers. This book summarizes what is known about the needs of and appropriate service provision for people dying of causes other than cancer and begins to set a research agenda.
Author: Benjamin J. Sadock
Publisher: Lippincott Williams & Wilkins
ISBN: 9780781773270
Category : Medical
Languages : en
Pages : 1510
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Book Description
The bestselling general psychiatry text since 1972 is now thoroughly updated. This complete, concise overview of the entire field of psychiatry is a staple board review text for psychiatry residents and is popular with a broad range of students and practitioners in medicine, clinical psychology, social work, nursing, and occupational therapy.
