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Author: National Research Council
Publisher: National Academies Press
ISBN: 0309088984
Category : Medical
Languages : en
Pages : 225
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Book Description
Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.
Author: National Research Council
Publisher: National Academies Press
ISBN: 0309088984
Category : Medical
Languages : en
Pages : 225
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Book Description
Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.
Author: Nancy Keene
Publisher: Childhood Cancer Guides
ISBN: 1941089143
Category : Health & Fitness
Languages : en
Pages : 481
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Book Description
More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
Author: Grace A. Mucci
Publisher: Springer
ISBN: 1489975845
Category : Psychology
Languages : en
Pages : 542
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Book Description
This authoritative reference examines in depth the myriad challenges facing pediatric cancer survivors and proposes a robust framework for structured follow-up of these patients through adulthood. Approaches to long-term follow-up include both established models of care and targeted models of lifelong surveillance of late effects by bodily systems and neurological outcomes. Sections devoted to quality of life and re-entry after treatment focus on key concerns such as health risk behaviors, school and career issues, psychological challenges, and care disparities. And a robust resources section adds extra usefulness to the expert coverage. Among the Handbook's topics: • Developmental considerations in the transition from child and adolescent to adult survivorship. • Long-term follow-up roadmaps by disease and treatment. • Neuropsychological effects of pediatric brain tumors and associated treatment. • Building resiliency in childhood cancer survivors: a clinician’s perspective. • School issues and educational strategies for survivors of childhood cancer. • Educating and preparing the childhood cancer survivor for long-term care: a curriculum model for cancer centers. A work of rare scope, scholarship, and clinical acumen, the Handbook of Long-Term Care of the Childhood Cancer Survivor is a rewarding, practice-building resource essential to a wide range of healing professionals, including primary care physicians, pediatricians, oncologists, nurses, psychologists, neuropsychologists, child psychologists, and licensed therapists.
Author: The National Cancer Institute
Publisher: National Academies Press
ISBN: 0309103185
Category : Medical
Languages : en
Pages : 320
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Book Description
One of the key recommendations of the joint IOM and NRC book, From Cancer Patient to Cancer Survivor: Lost in Transition, is that patients completing their primary treatment for cancer be given a summary of their treatment and a comprehensive plan for follow-up. This book answers practical questions about how this "Survivorship Care Plan," including what exactly it should contain, who will be responsible for creating and discussing it, implementation strategies, and anticipated barriers and challenges.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309374448
Category : Medical
Languages : en
Pages : 126
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Book Description
Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop.
Author: Michael Feuerstein
Publisher: Springer Science & Business Media
ISBN: 1441913483
Category : Medical
Languages : en
Pages : 395
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Book Description
Health has been conceptualized by world and national health organizations (WHO, CDC, Healthy People 2010) as more than the absence of disease. It involves a focus on physical, psychosocial, and functional aspects of life as well as the prevention of future illnesses. At this point in the development of quality health care for cancer survivors, there is sufficient knowledge and expert opinion to push efforts forward to improve the health of cancer survivors. Clearly there is more research in the most prevalent forms of cancers (e.g., breast cancer) than others that provide us with guidance on how to optimize their health, but there are data on other forms of cancers that can also better inform practice. There may also be general care practices that can cut across cancer types. There has been an emergence of epidemiological and clinical research in cancer survivors that can form the basis for a revolution in the quality and nature of health care that survivors receive. This book not only provides the reader with diverse perspectives and data but also integrates this information so it can serve as the foundation necessary to improve and maintain the health of cancer survivors. Reporting of symptoms to health care providers is a complex, multi-determined problem influenced not only by the pathophysiology but also, as we have learned over the years through pain research, by societal, cultural, and biobehavioral factors. This book will consider this important aspect of follow-up for millions of cancer survivors because of the strong reliance on symptom reporting for clinical decision making. In order for us to generate meaningful and effective treatment, we need to better understand the symptom experience in cancer survivors. This book provides much information that will assist us to better understand and manage this complicated end point. The presenting problems need to be articulated and “conceptualized” as clearly as possible by both parties so appropriate actions can be taken. Since health care costs are a major concern for patients, payers, and providers, this area will also be addressed in all the relevant sections. In taking an interdisciplinary perspective, this book illustrates the importance of a team approach to the improvement of health care and associated health, well-being, and functioning in cancer survivors. The 17 chapters cover critical topics of which physicians and providers of all types must be aware in order to provide the most comprehensive and responsive care for cancer survivors. All of the clinical care chapters include case studies to illustrate the real-world application of these approaches in cancer survivors. Information about sources of referral both within and outside the traditional health care communities will be provided in tabular form. There is no other text that provides both an overview of the problems and their challenges, case illustrations of direct application, and the reality of reimbursement for such care. The editors hope that there may be no need for the clinician or the survivor to adapt to a “new normal” if the presenting problems are understood and handled from an interdisciplinary perspective as outlined here.
Author: National Research Council
Publisher: National Academies Press
ISBN: 0309180295
Category : Medical
Languages : en
Pages : 196
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Book Description
This report of the proceedings of a symposium held in conjunction with the release of the IOM report, From Cancer Patient to Cancer Survivor: Lost in Transition, represents an effort on the part of the American Society of Clinical Oncology (ASCO), the National Coalition for Cancer Survivorship (NCCS), and the Institute of Medicine (IOM) to further disseminate the findings and recommendations of the IOM report and to take the next step toward implementation of those recommendations. The symposium and this report serve as important vehicles to raise awareness, fill gaps that have existed in cancer patients' long-term care, and chart a course for quality care for cancer survivors and their families. More than 100 stakeholders in the cancer community, including survivors, advocates, healthcare providers, government officials, insurers and payers, and researchers participated in the symposium. This report culminates a series of work at the IOM focused on cancer survivorship. The idea to embark on a major study of cancer survivorship within the National Academies originated with the National Cancer Policy Board (NCPB). The NCPB was established in 1997 in the IOM and the National Research Council's Division of Earth and Life Studies at the request of the National Cancer Institute (NCI), the National Institutes of Health, and the President's Cancer Panel. The NCPB identified emerging policy issues in the nation's effort to combat cancer, and prepared reports that address those issues, including a series of reports on topics ranging from cancer prevention to end-of-life care.
Author: Grace Hyslop Christ
Publisher: Oxford University Press, USA
ISBN: 0199941920
Category : Medical
Languages : en
Pages : 873
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Book Description
The development of this inaugural Handbook of Oncology Social Work: Psychosocial Care for People With Cancer provides a repository of the scope of oncology social workers' clinical practice, education, research, policy and program leadership in the psychosocial care of people with cancer and their families. It focuses on the unique synergy of social work perspectives, values, knowledge, and skills with the psychosocial needs of cancer patients, their families, and the health care systems in which they are treated. It addresses both the science and art of psychosocial care and identifies the increasing specialization of oncology social work related to its unique knowledge base, skills, role, and the progressive complexity of psychosocial challenges for patients with cancer. This Handbook equips the reader with all that we know today in oncology social work about patient and family centered care, distress screening, genetics, survivorship, care coordination, sociocultural and economic diversity, legal and ethical matters, clinical work with adults living with cancer, cancer across the lifespan, their caregivers and families, pediatrics, loss and grief, professional career development, leadership, and innovation. Our hope is that in reading this Handbook you will identify new areas where each of you can leave your mark as innovators and change agents in our evolving field of practice.
Author: Cheryl Krauter
Publisher: Oxford University Press
ISBN: 0190636386
Category : Medical
Languages : en
Pages : 288
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Book Description
Currently there is a crisis occurring in healthcare involving clinician burnout, emotional exhaustion, lack of inspiration, and loss of personal meaning. For clinicians caring for cancer survivors, these feelings are aggravated by facing the largely unknown realm of survivorship and the issues it brings to patients and clinicians alike. As the number of cancer survivors grows, psychosocial oncology clinicians are increasingly called upon to work with the long-term aftermath of a cancer diagnosis, which requires the capacity to address the emotional and psychosocial issues that are not part of a traditional medical education. Clinicians have plenty of textbooks, but fewer hands-on, interactive guides that teach these kinds of experiential lessons that can be used in their day-to-day work lives. This accessible workbook offers a way to think about these important ideas while providing a structure to implement humanistic clinical practices. Clinical skills, communication tools, empathy as a learned capacity, cultural humility, reflective and mindful exercises designed to increase relationship skills-all of these depend upon this mode of experiential learning, as it teaches useful practices and solutions in order to increase the efficacy and satisfaction of clinical work with cancer survivors and their communities. Psychosocial Care of Cancer Survivors: A Clinician's Guide and Workbook for Providing Wholehearted Care is a clinical resource for healthcare practitioners that presents person-centered care as an antidote to the distress both patients and clinicians face in cancer survivorship. It addresses questions of how to bring a humanistic approach and quality attention to the growing needs of patients in the post-treatment phase of a cancer diagnosis. As a workbook, it's both a guide and an applicable resource for daily clinical practice. It provides a needed structure for clinicians to help them reconnect with the meaningful aspects of their work. Designed for busy psychosocial oncology clinicians who may feel disconnected but don't fully understand why, this workbook addresses the need for a humanistic and pragmatic approach to the psychosocial issues that arise in their work with patients. Based on personal interviews with clinicians, written feedback from clinicians, and research describing the formidable demands facing professionals working in cancer healthcare, as well as the dangers of burnout, this is highly practical, interactive guide addresses the emotional and psychological concerns of both patient and clinician. This workbook will be a much-needed resource for humanizing cancer survivorship care. The book is presented in two parts: - Part I focuses on skillful means for providing humanistic patient care. - Part II offers clinicians pragmatic structures and methods they can start using with patients right away, and provides a humanistic clinical framework that benefits them both personally and professionally. Clinicians will gain: - Clinical skills vital to forming healing clinical relationships: - Communication tools to enhance effective collaboration, such as personal and professional boundaries, the essentials of a healing relationship, stages of the clinical interview, collegial collaboration. - Exercises designed for personal reflection and the implementation of the abovementioned clinical skills and communication tools. - Useful practices and solutions to increase the efficacy and satisfaction of their work. Written from the perspective of a clinician-survivor, Psychosocial Care of Cancer Survivors is about the healing power of relationship for both patient and practitioner as they negotiate the complex world of cancer survivorship.
Author: Stewart Goldman
Publisher: Springer Science & Business Media
ISBN: 0387771034
Category : Medical
Languages : en
Pages : 436
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Book Description
Late Effects of Treatment for Brain Tumors reviews the development of the medical team's awareness of late effects of brain tumor treatment and an overview of brain tumor survivorship. It reviews the late effects by topic and by organ systems, educates, and provides guidelines for follow up and interventions for patient survivorship. Advocacy for survivors and models for the importance of coordinated late effects programs are also discussed.
